Showing posts with label compassion. Show all posts
Showing posts with label compassion. Show all posts

Monday, September 27, 2021

I Pray for Allergies

 Sunday morning I woke up dizzy and prayed. Please God, I said, let it be allergies. And that’s how it goes when you have metastatic cancer; you pray your symptoms, which in a worse case scenario could point to cancer progression, point to something else instead. Like dizziness, a symptom I’ve had on and off for much of my life, usually at the change of seasons, usually because I’m having some kind of allergy fit that creates sinus pressure that creates vertigo. Or…something else? If I didn’t have a cancer diagnosis, I’d be cursing my allergies instead of praying to have them. It’s all a matter of perspective, eh?

So this is to say that after some lovely self care and a lymphatic massage by my very gifted healer stepdaughter, the dizziness is subsiding, which means it probably was the all-too-familiar vertigo caused by allergies and not the brain tumor I fear. Relief. But many lung cancer patients I know think this way: Please let this symptom (pain, dizziness, balance issues, swelling, etc.) which could mean disease progression, actually mean something else.


I do other things beside think about cancer all the time, though. Like this past summer, husband and I got ourselves across the pond (yes during a pandemic), and, with the considerable help of our good friend Ivan, trekked around Holland, France, Spain, and Portugal. Me and my dear ones and my cancer diagnosis. The best part of that trip was, of course, being with husband and dear friends along the way. The second best part was that I got to do a few long walks from St. Jean Pied de Port in France to Pamplona, Spain, three stages along the holy pilgrimage, El Camino de Santiago, through the Pyrenees. How kind people were on the route—hospitable, chatty, gracious, glad to see pilgrims returning and walking through their gorgeous little villages, stopping for coffee or a leisurely Spanish lunch and hostel bunk. The small kindesses of the trail, a passing greeting “buen camino!” spectacular mountain views, a traffic jam of sheep and goats, sore feet, weary bones, deep sleeps and early rising for more, all lovely, soul-nourishing stuff. Being a pilgrim is humbling. We really do depend on the kindness and hospitality of strangers. We walk with and are welcomed by compassion.

I won’t say that I forgot about having cancer on that trip, because I didn’t. But as I walked on the Camino in Navarre and visited more of its landmark cathedrals in other cities in Northern Spain, I carried hopes and prayers for all the people I know who are dealing with some form of cancer. If you’ve ever sat in a packed oncology clinic waiting room (and they are always, always, shockingly, packed) you begin to sense how many people’s lives are affected by this thief of joy. In some ways the commonness of cancer makes it seem not even worth noting. Everyone either has cancer, has had cancer, or loves someone who has, has had, or died of cancer. It’s so ordinary that it’s practically banal. Having cancer isn’t special; it’s typical. But perhaps that’s what makes it feel so tragic; the scope of this ordinary human experience of illness is stunning. And it’s brutal. Those who have cancer find themselves pilgrims in a strange land of diagnosis and treatment, hope and fear, pain and pain and pain. We depend on the kindness, compassion, and skill of others to care for our bodies. Sometimes we come to rely on others for a little help with our souls. That’s what this cancer pilgrim was up to in Europe this past summer, and what she’s working on now…the soul part. More on that in future posts. For now, I wish all my fellow travellers un buen camino and hope you’ll wish this sojourner the same.

White Ribbon for Lung Cancer Awareness at La Playa de la Cueva




Sunday, November 8, 2020

On Consequences and Cancer


This week, I finally got to take a genuinely deep breath, one I've been holding for four years. And not a day too soon. Tomorrow, November 9, is the third anniversary of my metastatic lung cancer diagnosis. That's right; one year after our last presidential election, the outcome of which I thought was one of the worst things that had ever happened, I got even worse news. I—a non-smoking, kale-eating, yoga-practicing, peace-loving, 54-year-old healthy woman—had (and still have) late stage lung cancer. There are things worse than President #45.

Today, I am breathing more easily both literally and figuratively. Thanks to excellent care and cutting- edge treatment, my most recent scans show that the very rare form of lung cancer I have is currently stable. And thanks to what I consider to be a hopeful election, I am less fearful about my ability to continue to access great health care here in America.

Americans go to the polls in their own self-interest. When they step into the voting booth, they take with them their parents and grandparents, along with their kids. They take their work, their health, their schooling. They vote with their gender, their race, their age. They bring their religion and/or other ideologies that they probably inherited from their parents. They take their wallets and houses and communities. They take whatever priorities they have and vote for the people they think will best address them.

I voted for myself. I voted for my cancer. So I couldn't vote for the candidate who scoffs at science and scientists, who has allowed a pandemic to rage, unabated, and who, for four years, promised "beautiful" health care reform that never showed, and instead, gutted the plan we already had. I couldn't support an administration that cut funding to important health care institutions and agencies, like the National Cancer Institute. Instead, I voted for a candidate who supports universal access to affordable health care, and who, before he ran for office, ran a cancer foundation to honor his son who died of brain cancer, a candidate who understands that the answers to solving our greatest public health crises are found in science and reason, not hot and paranoid politics.

I am a person of faith who tries, every day, with varying degrees of success, to be compassionate. So I voted for the candidate who went to Mass and then prayed at the graves of his dead children and wife on election day. I didn't vote for the guy who held a Bible upside down for a photo op in a churchyard where resting protesters were teargassed and driven violently away.

I am a person of small means, economically speaking. I voted for the candidate who grew up in a working class community and understands that struggle, not for the one born with the silver spoon.

I have friends and family members of all races. One of my closest friends is blind. I have so many friends in the LGBTQ+ community, and family members who are trans and gay. I have friends and former students who are Dreamers. I come from a family of immigrants. I couldn't vote for the candidate who denies the vulnerable protection and justice, who calls them criminals and thugs.

I am a writer and poet. I couldn't vote for the candidate who doesn't read, who doesn't love poetry and art and good music, who butchers language with hateful rhetoric. And who doesn't like dogs. So I voted for the guy who quotes Seamus Heaney, who has two big dogs, and who married an English teacher who isn't, thank goodness, a supermodel.

Elections have consequences. I like my chances with this guy.



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