Mayonnaise

I FaceTimed recently with a friend who has suffered from low vision all her life. It wasn't until she was a middle-aged adult that a doctor finally declared her legally blind, though she probably could have qualified much earlier. Up until very recently, with the use of adaptive technology, she could see super-enlarged type on the computer, make her own meals, and even do a bit of quilting. Though she hasn't been able to drive in years, she's been able to live relatively independently with some help from part-time caregivers and delivery services. That changed a few weeks ago when an ocular migraine further clouded her already shaky vision. 

She told me it feels like someone suddenly put mayonnaise over what was left of her sight. Now the light gets in through a white translucence, and there are shapes, shadows, things in motion, but when it comes right down to it she can't see. She just can't see. And she lives alone. It's terrifying.

My friend is seeking treatment, but appointment wait-times are long, and she has to arrange for transportation, which is not so easy in the rural/suburban community where she lives. She can't just call Uber or even a taxi service, and she hasn't the means, nor the desire to move to a place where such things are ubiquitous. Even if she could summon a car, her limited, fixed income would make using such services prohibitive, and the free services available to people with disability tend to be erratic in their scheduling.

Oh, and there's a pandemic, which makes all of that more complicated and worse. Of course.

So we talk about mayonnaise and make offensive blind jokes and cancer jokes to keep our spirits up. We also reminisce about that time decades ago, in school, when we thought we could do or be anything we wanted, which for us meant having lifelong careers in academe, enormous private libraries in our houses, and scholarly projects that required sabbaticals in the south of France. Instead, we're adorably chunky, late-middle-aged, learned women living creatively on slender means and making awful jokes about awful situations over a video-link like dystopic Jetsons.

I say to her "My brain feels like it's been mayonnaised." Every thought is slippery and cloudy. Cancer people call it chemo-brain, or brain fog, but I like my friend's simile better—mayonnaise being in places it shouldn't ever go. I have never liked mayonnaise, never willingly put it on sandwiches, won't eat salads made with it, etc. I even skipped the mayonnaise in France, where I've visited twice, and where, I'm told, it's particularly good.

So that's my advice. Skip the mayonnaise. Definitely don't put it in your eyes or your brains if you can help it. And don't get cancer or blindness. Or coronavirus. Stay as well as you are able, lovelies. I like being here with you, even in a pandemic.

A Li'l Ragey

Some of my friends reading this post might also see me posting on Facebook or Twitter. And they might have noticed that I've gotten a little less flowery and a little more ragey on my socials. Rage is maybe my least favorite emotion. It eats me all up inside, loses me friends, and gets me the silent treatment from family, who are obliged to love me anyway (in the case of my rages, from a bemused distance). Nevertheless, I have given rage some reign recently. A little gallop in the wind, so to speak. An airing of grievances.

But I worry this rage could be unhealthy, so I'm trying to not feed it things like fear and negativity, gloom and doom. Because we know that stuff is only gonna grow wild, and it doesn't take much for it to sprout into a whole toxic garden of hellacious thorns.

Still, there is the current reality. It is what it is, and considering that reality, you know this rage isn't unfounded or misplaced. If you're reading this, it's quite possible you feel it with me. But when I try to put my finger on the exact cause or source of my own rage, what comes back is the lame phrase "oh....just.....all of it!" And by "it" I mean all the noise that comes in the whirlwind of living in honest-to-goodness pandemic times. The inane policies. The creepy conspiracy theories. The admonishments to do and be better humans. The face-palm-worthy stupidities of leadership. The limits on where I can go and whom I can see. The current efforts to undermine our electoral processes. The failures in protecting our essential workers. The pasta shortages. For real. Pasta shortages. I can't even.

Oh, and cancer. Especially the fact that clinical trials, on which so many late stage patients depend for treatment, are stalled because of the pandemic. Access to other treatments and surgeries have been delayed as well. That sucks too.

And the senseless, needless deaths.

People, I'm trying to turn my rage into good, to harness it as creative and productive energy. I'm trying to keep out of trouble and out of jail (it's nearly impossible to get good cancer treatment when you're a felon). But some days containing that rage, even to a speedy canter, is hard. When I express it, stomping around the house, shouting about the latest absurd headlines, bemoaning the fate of the country, it doesn't change anything. Except my foul mood. I do feel better after a good stomp. So go ahead, darlings, stomp and shout. Embrace your inner toddler for ten minutes, or ten days. It's fine. 

People who love me advise again and again...avoid the news, avoid the socials. They'll just make you upset.

I don't want to be that ostrich.

So I'm gonna ride this rage and hope it doesn't buck me off. And I'm gonna being fuckin' grateful I'm alive to feel it.

Beauty Anyway

It poured rain today, Easter Sunday, drenching everything here in Nashville into a soggy mess. In some places there were severe weather watches. Some of my friends up north still have snow. As far as I know, the Easter Sunday churches weren’t packed, because they weren’t supposed

to be open. Christians who celebrate Easter today and those who will be celebrating Orthodox Easter next week, like Jews recently celebrating Passover, are compelled to keep their observances at home.

And whether or not we individually subscribe to a religious observance right now, this time of year feels like a pivot point for lots of us, as we step for real into spring, new beginnings, stirred by pretty days. Still, right now especially, we’re all terribly...uncertain about what comes next.

Because it’s Easter, I can’t help but think about what historians believe life was like for the folks who eventually became Christians in the earliest times, in the last millenium’s first decades and centuries. For the most part, those folks were Jews (and some Gentiles and others) who had, according to the various stories circulating around the Mediterranean in those days, experienced and witnessed some remarkable things while hanging out with this weird carpenter turned radical rabbi/street preacher. Or if they hadn’t seen it with their own eyes, they’d heard the tales. Their own customs and religious practices as Jews had been suppressed and surveilled by the Romans. Their holiest temple had been destroyed, rebuilt, and then destroyed again. Many of their families had lived centuries as refugees far from their ancestral homelands, and some of them living in and around Jerusalem were themselves refugees from other territories. The local and imperial governments couldn’t agree on laws; currency markets were shaky, income inequality crushed the working people, xenophobia thrived, little wars were breaking out all over, and health care sucked. You can see why a street preacher, or even a story about a street preacher with an optimistic message might have gained some traction with that crowd.

That story isn’t one to which most Americans today subscribe, though. It doesn’t bring people comfort in the way it might have even just a few generations ago, and there are lots of good reasons for that, which I won’t get into here. Let’s just say the cruelties inflicted on others in the name of that radical rabbi/street preacher have pretty much discredited most institutions trying to stake a claim on his story.

And yet some people have faith. It might not be a religious faith, but they believe in goodness.

They believe in beauty. They believe in the power of a seed to germinate into something beautiful, something edible, something tall and shady, something wild. And now, now is the time for sowing, friends. Get your beauty planted, people; we’re going to need it in the coming days.

Humans crave beauty. It’s one of the reasons I take so many pictures of flowers. It’s why we paint, or sing, or write poems, or dance. Beauty is its own life force. I think that’s one reason so many cancer patients turn to art when they fall ill, when they are dying. In the ugliness of illness, in the destruction of our bodily temples, we reach for good, and we long for beauty.

It’s my third Easter since diagnosis; my third year of snapping pictures of blooms, of dealing with pollen allergies. It’s my first living with threat of coronavirus. I can’t see far enough into the future to know how that one is going to end, so I’m going to try doing what has worked for me in dealing with cancer. Train my eye on the beautiful and pull it in. That doesn’t mean I’m not acknowledging or caring for the things that are not beautiful; I live with a hideous disease deep inside my body and see awfulness in my community every day. It’s grim stuff and it needs fixing. But that doesn’t mean that we can’t have beauty anyway.